HER2 Support Group Forums - View Single Post

Delaney · 10-17-2010, 04:59 AM

Hi Amelia,
I dont know my weight in pounds but I am 59 kilos. I did a clinical trial of tyverb only for one year, when I was considered 'early stage'. Had no side effects then. A few weeks after been taken off tyverb I noticed a 'spot' on my chest, this was biopsied, positive for cancer. CT scan then found more in lymph nodes and lungs. Am on my 4th cycle of tyverb/xeloda now. My hands and feet are cracked and sore, I wear latex gloves for housework and cotton gloves in bed. I find that compeed blister packs are good for my feet, its like getting a second skin and I can walk and exercise. Yesterday I got melt on the tongue immodium because I was so fed up of running to the bathroom. It worked. I eat bagels and bananas and pancakes, seem to tolerate them well. Am afraid to eat too much fruit and vegetables but plums seem to be ok. I dont work, was job hunting when diagnosed. Some days I feel really well and 'normal', other days I wonder why I should get out of bed. The xeloda has given me a red rash on my nose but aveeno cream and foundation cover it up. Hope you are doing well. Best wishes. I hope we will both be NED soon.

10-17-2010, 04:59 AM	#9
Delaney Senior Member Join Date: May 2010 Location: Ireland Posts: 271	Re: Update Hi Amelia, I dont know my weight in pounds but I am 59 kilos. I did a clinical trial of tyverb only for one year, when I was considered 'early stage'. Had no side effects then. A few weeks after been taken off tyverb I noticed a 'spot' on my chest, this was biopsied, positive for cancer. CT scan then found more in lymph nodes and lungs. Am on my 4th cycle of tyverb/xeloda now. My hands and feet are cracked and sore, I wear latex gloves for housework and cotton gloves in bed. I find that compeed blister packs are good for my feet, its like getting a second skin and I can walk and exercise. Yesterday I got melt on the tongue immodium because I was so fed up of running to the bathroom. It worked. I eat bagels and bananas and pancakes, seem to tolerate them well. Am afraid to eat too much fruit and vegetables but plums seem to be ok. I dont work, was job hunting when diagnosed. Some days I feel really well and 'normal', other days I wonder why I should get out of bed. The xeloda has given me a red rash on my nose but aveeno cream and foundation cover it up. Hope you are doing well. Best wishes. I hope we will both be NED soon. __________________ Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr. dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin. Stopped taxtere/herceptin, now on tyverb/xeloda. Lung mets shrinking. Back on Herceptin with T/X. Partial response. Skin mets progressing. Radiation scheduled mid february 2011. Spot found on hip - radiation to hip beginning mid February 2011. Now trying Gemzar/Tyverb/Herceptin and Zometa. CT scan Feb 2011 - lung clear! Brain mets (specks) - radiation mid Feb. Brain Scan June'11 - Clear CT Scan June'11 - Good - skin met active - watch and wait. Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.