HER2 Support Group Forums - View Single Post - SRS instead of WBR as initial treatment for bc brain mets, even when not solitary or

Darlene Denise · 10-14-2010, 02:10 PM

Good to see this type of info FINALLY making it's way to women who often times aren't offered anything other than WBR by their community medical resources.

I'm right behind you Brenda on this issue. I had to beg and use my real tears to convince the doctors at UNC to use the Cyberknife (SRS) on my initial low volume 8 lesions in 9/08 and 3 more 6/09. I currently hold the record at UNC for number of brain lesions treated with Cyber and I told them I wanted my case to become part of evidence based medicine for this issue and to open the door for others to have this same choice and to encourage them to stop using only WBR because it has long standing data. Medicine can never move forward it you don't step away from barbaric treatments when there are new technologies and educated patients that deserve them. They have shared with me that they have been able to use my case to get insurance approval for others to have this treatment.

I am glad to see this subject addressed.

Darlene

10-14-2010, 02:10 PM	#6
Darlene Denise Senior Member Join Date: Aug 2008 Location: Virginia Beach, Virginia Posts: 145	Re: SRS instead of WBR as initial treatment for bc brain mets, even when not solitary Good to see this type of info FINALLY making it's way to women who often times aren't offered anything other than WBR by their community medical resources. I'm right behind you Brenda on this issue. I had to beg and use my real tears to convince the doctors at UNC to use the Cyberknife (SRS) on my initial low volume 8 lesions in 9/08 and 3 more 6/09. I currently hold the record at UNC for number of brain lesions treated with Cyber and I told them I wanted my case to become part of evidence based medicine for this issue and to open the door for others to have this same choice and to encourage them to stop using only WBR because it has long standing data. Medicine can never move forward it you don't step away from barbaric treatments when there are new technologies and educated patients that deserve them. They have shared with me that they have been able to use my case to get insurance approval for others to have this treatment. I am glad to see this subject addressed. Darlene __________________ 12/14/07 IDC ER- PR- HER2+++ LIVER METS AT DX CONFIRMED BY LIVER BIOPSY 01/14/08 2 AC TREATMENTS-NOT WORKING 02/04/08 13 TAXOL, CARBO, HERCEPTIN TREATMENT-EXCELLENT RESULTS! 05/12/08 HERCEPTIN EVERY 3 WKS 08/22/08 BRAIN METS! 8 <5MM 09/17/08 CYBERKNIFED BRAIN METS 10/20/08 BRAIN METS SHRINKING 12/29/08 BRAIN SCAN SHOWS 1 LESION GONE, 7 SHRINKING & STABLE, 1MM ? SPOT 01/16/09 LIVER REOCUR-XELODA/HERCEPTIN 03/02/09 BRAIN SCAN 2 LESIONS GONE, 5 STABLE, 1MM ? SPOT STILL A ? 3/27/09 REGRESSION OF 2 LIVER LESIONS XELODA & HERCEPTIN 06/08/09 STUPID BRAIN HAS 3 LESIONS 06/29/09 CYBERKNIFE 07/01/09 LIVER REGRESSION NO NEW METS 07/07/09 TYKERB XELODA HERCEPTIN 11/11/09 GEMZAR/HERCEPTIN FOR LIVER PROGRESSION 03/22/10 BRAIN MRI GOOD-3 SMALL NECROSIS LEFT FROM ORIG 11!! 03/26/10 CHANGE TO NAVELBINE/HERCEPTIN 3 LIVER LESIONS PROGRESSING IN SIZE 05/21/10 NAVELBINE/HERCEPTIN WORKING! 07/19/10 GOOD BRAIN MRI 08/20/10 LIVER PROGRESSION 09/08/10 TDM1 - NASHVILLE TN 01/10/11 LIVER RESPONDING TO TDM1