HER2 Support Group Forums - View Single Post - ASCO Breast--lymphedema news--not so good

Jackie07 · 10-10-2010, 08:18 PM

Bonnie,

Glad it turned out to be benigh...

I had the same 'horror' experience after my bi-lateral mastectomy. At 'midnight', a young staff approached my bed and said she's going to take my blood pressure. I screamed from the top of my lung when she grabbed my right arm where I'd lost 11 lymph nodes from two surgeries in a four year span.

I've never been so 'rude' in my whole life and still feel bad to have chewed her out.... Several hours later, another staff came in and took the blood pressure from my lower calf. I asked her how come she knew what to do and the previous staff did not know the correct procedure. She replied that she's an experienced 'supervisor' and from the 'tape' accross my chest she could tell that I'd had bilateral mastectomy.

No telling what could have happened had my family not stayed close watch during my semi-comatose in the ICU after my brain surgery in 1990... A young volunteer did 'drop' me at the wrong station one time during my rehab.

10-10-2010, 08:18 PM	#8
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,809	Re: ASCO Breast--lymphedema news--not so good Bonnie, Glad it turned out to be benigh... I had the same 'horror' experience after my bi-lateral mastectomy. At 'midnight', a young staff approached my bed and said she's going to take my blood pressure. I screamed from the top of my lung when she grabbed my right arm where I'd lost 11 lymph nodes from two surgeries in a four year span. I've never been so 'rude' in my whole life and still feel bad to have chewed her out.... Several hours later, another staff came in and took the blood pressure from my lower calf. I asked her how come she knew what to do and the previous staff did not know the correct procedure. She replied that she's an experienced 'supervisor' and from the 'tape' accross my chest she could tell that I'd had bilateral mastectomy. No telling what could have happened had my family not stayed close watch during my semi-comatose in the ICU after my brain surgery in 1990... A young volunteer did 'drop' me at the wrong station one time during my rehab. __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe