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Chelee · 10-08-2010, 01:51 PM

Tricia,
It's so nice to hear from you. Glad you are doing well all things considered. Seems like you and me are the only two that have these strange side affects with the pounding in ears...and severe ear pain on Navy Beans. (I also had jaw pain right in front of each ear lobe...it hurt!) After reading your post I think I might go see a ENT and have my ears checked out. Like you...the side affects from Navelbine bothered/worried me more then the darned recurrence.

Sorry to hear about your nausea. Sometimes it helps to have about six small meals throughout your day...try not to let you stomach get empty. (Easier said then done...I know.) But it really does help. That is a nice drop in your CA27.29...wonderful news...at least you know it's working. You have a long history of kicking cancers behind...and you "will" do it again! Your such an amazing and inspriation to me. I will continue to keep you in my thoughts and prayers that you can remain on Herceptin...and that all of this will soon be in your rear view mirror. Hang in there Tricia.

Sending you lots of positive energy and love.

Chelee

10-08-2010, 01:51 PM	#8
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: Thinking of you Tricia Tricia, It's so nice to hear from you. Glad you are doing well all things considered. Seems like you and me are the only two that have these strange side affects with the pounding in ears...and severe ear pain on Navy Beans. (I also had jaw pain right in front of each ear lobe...it hurt!) After reading your post I think I might go see a ENT and have my ears checked out. Like you...the side affects from Navelbine bothered/worried me more then the darned recurrence. Sorry to hear about your nausea. Sometimes it helps to have about six small meals throughout your day...try not to let you stomach get empty. (Easier said then done...I know.) But it really does help. That is a nice drop in your CA27.29...wonderful news...at least you know it's working. You have a long history of kicking cancers behind...and you "will" do it again! Your such an amazing and inspriation to me. I will continue to keep you in my thoughts and prayers that you can remain on Herceptin...and that all of this will soon be in your rear view mirror. Hang in there Tricia. Sending you lots of positive energy and love. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.