HER2 Support Group Forums - View Single Post - Oncologist says no clinical trials for me

Debbie L. · 10-03-2010, 09:15 AM

Candlegranny,

You could search the database at clinicaltrials.gov, but I'm not sure what you'd call what you want. Post-adjuvant treatment, perhaps?

Where are you getting your treatment? If you have not already done so, it's always a good idea to get a second opinion at an NCI-designated comprehensive cancer center. They might also be more in touch with new trials. http://cancercenters.cancer.gov/canc...ters-list.html

It does seem that almost all clinical trials are for the actual adjuvant treatment, not for after adjuvant treatment ends. And for metastatic disease, of course.

I am hopeful about vaccine trials but cautious too when reading results. They will report "positive responses" when all they mean is that they were able to measure some response of the immune system that changed. It doesn't mean (necessarily) that they actually saw fewer recurrences or longer times of NED in those who had those responses. At least not so far.

You're still getting Herceptin, right? It seems to me like there are women on this list who continued Herceptin past 1 year, after some stage III diagnoses. Do I remember that correctly? Again, I think that this is an excellent time for that 2nd (or even 3rd) opinion.

If it's specifically a trial that you want (as opposed to a 2nd opinion on where to go from here), you might also try one of the websites that say they assist people with finding trials. I do not know anything about these websites (sorry) so can't actually recommend them. If you do try them (the trial-finding websites), would you report back to us about how that went?

http://www.emergingmed.com/

http://www.clinicalconnection.com/joincc.aspx?gclid=CJC-wMuJt6QCFQn6iAodShOxFg

Debbie Laxague

10-03-2010, 09:15 AM	#4
Debbie L. Senior Member Join Date: Jul 2006 Posts: 463	Re: Oncologist says no clinical trials for me Candlegranny, You could search the database at clinicaltrials.gov, but I'm not sure what you'd call what you want. Post-adjuvant treatment, perhaps? Where are you getting your treatment? If you have not already done so, it's always a good idea to get a second opinion at an NCI-designated comprehensive cancer center. They might also be more in touch with new trials. http://cancercenters.cancer.gov/canc...ters-list.html It does seem that almost all clinical trials are for the actual adjuvant treatment, not for after adjuvant treatment ends. And for metastatic disease, of course. I am hopeful about vaccine trials but cautious too when reading results. They will report "positive responses" when all they mean is that they were able to measure some response of the immune system that changed. It doesn't mean (necessarily) that they actually saw fewer recurrences or longer times of NED in those who had those responses. At least not so far. You're still getting Herceptin, right? It seems to me like there are women on this list who continued Herceptin past 1 year, after some stage III diagnoses. Do I remember that correctly? Again, I think that this is an excellent time for that 2nd (or even 3rd) opinion. If it's specifically a trial that you want (as opposed to a 2nd opinion on where to go from here), you might also try one of the websites that say they assist people with finding trials. I do not know anything about these websites (sorry) so can't actually recommend them. If you do try them (the trial-finding websites), would you report back to us about how that went? http://www.emergingmed.com/ http://www.clinicalconnection.com/joincc.aspx?gclid=CJC-wMuJt6QCFQn6iAodShOxFg Debbie Laxague