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Chelee · 09-16-2010, 01:28 PM

My onc does run a CA27.29 and it does seem to be a good indicator for me that I've recurred. But I've been asking my onc to run a CTC for 3 yrs now. She always told me this test isn't prime time yet. But I've stayed on her about it and she just agreeded to order it at my last appt. She said she doubted my insurance would ok it. But like Lori said...being stage IV I don't see why they would say no?

Obviously they really don't use the CTC here because while in my infusion chair the gal that schedules all my appts, tests, scans came out to me and asked what this test was? Said she had never heard of--or ordered this test before. She has been there along time & is good at what she does so this surprised me. So I feel like I'm going to be the 1st one to have a CTC if Blue Cross OK's it? Although I wish I would of had a baseline CTC so I had something to compare it too. But first we will see if I get the green light.

Chelee

09-16-2010, 01:28 PM	#10
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: Circulating Cell Recurrance test My onc does run a CA27.29 and it does seem to be a good indicator for me that I've recurred. But I've been asking my onc to run a CTC for 3 yrs now. She always told me this test isn't prime time yet. But I've stayed on her about it and she just agreeded to order it at my last appt. She said she doubted my insurance would ok it. But like Lori said...being stage IV I don't see why they would say no? Obviously they really don't use the CTC here because while in my infusion chair the gal that schedules all my appts, tests, scans came out to me and asked what this test was? Said she had never heard of--or ordered this test before. She has been there along time & is good at what she does so this surprised me. So I feel like I'm going to be the 1st one to have a CTC if Blue Cross OK's it? Although I wish I would of had a baseline CTC so I had something to compare it too. But first we will see if I get the green light. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.