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Old 09-15-2010, 03:46 PM   #3
Joan M
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Join Date: Oct 2007
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Re: Urgent question on behalf of a friend

Vicki,

I suggest that besides asking the specific questions noted, your friend get a copy of the biopsy report, which would give the diagnosis.

My mother was diagnosed with breast cancer a few months ago. Her tumor was about 4 cm. She has moderate Alzheimer's disease and just turned 87. She seems to understand but never speaks. She's also in a wheelchair. The oncologist recommended only Femara to try to control the cancer, because my mother is ER+. He did not suggest a mastectomy and radiation. However, my mother is 9 years older than your friend's mother.

My brothers and I are waiting for the next mammogram to see whether the Femara is working.

Joan
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Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2023 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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