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Re: Early stage treatment discussion
I forever regret not to have insisted on getting a mastectomy and Herceptin when my breast cancer was first diagnosed in 2003. I did research on Her2 +++ breast cancer and had all the information I needed. But I trusted my doctors too much - why shouldn't I? After all, they are the expert.
Little did I know that I would become one of the victims and would be having misread mammagrams for the next 4 years. Then I realized why there were misdignoses for so many bc patients.
I am happy to be still alive and well. But all of these were so unnecessary. Why do the medical community continue to emphasize women's unwillingness to part their breasts? I wanted to have mastectomy and Herceptin after getting the information from most current research in 2003. And I was 'talked out of it' by both the surgeon and the oncologist.
They are still my doctors right now. And they are quite satisfied that I am a 'long-term' survivor. I was just encouraged to participated in the cancer support group in the hospital. And what can I share with other newly diagnosed? That they need to watch out for the recurrence from the over-confident doctors who chould not admit that they had goofed in my treatment?
That they need to watch out for the possibility of losing their jobs and then get on unemployment and disability? That nobody would really care if they get depressed because it is expected? That they have to put on a good facade lest people should think that they are crazy?
No. Not any of those. I know it very well - and my doctors know it very well - that I have always been a positive person who counts her blessings starting the day when she was born prematurely. I'd been counting my blessings ever since my life-long brain tumor had been diagnosed. I was the one who felt it all made sense when the breast cancer was first 'found' by ourselves while I was on unemployment. I'd never had paid attention to it had I'd been busy with a full-time job and other volunteer work (that's what happened during my recurrence.)
I am so glad to have found this site. I am so grateful for all the information I received here. It was here I learned that I could take control of the situation and requested for genes test and then had prophylactic hysterectomy/oophorectomy. I've never been more healthy in my whole life. I know that I have dodged another (couple of) bullets now that I'm no longer having 'low-grade fever'. I may still 'die prematurely' from something else. But at least I know I've done my best to fulfil my duty as a human - 'stay'n alive'.
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Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
Last edited by Jackie07; 09-01-2010 at 06:02 PM..
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