[Sandra in GA]

Kris,

I know this is a very difficult decision for you. After talking with you the other night I looked at the Sloane-Kettering trial. I am sorry it has taken me so long to respond to this thread. I fell over a small stool a week ago and broke a bone in my right hand. So, I am typing with one paw. Anyway, there are a couple of concerns I would have with this trial;
first- it is a phase I trial. This means this vaccine does not have any data showing it will work. The Walter Reed study is a phase II. The data from the phase I is supporting continued study with the two vaccinrs they are using.
second-there is a possibility that this vaccine could cause tumor development. The vaccines used in the Walter Reed study are both peptide based which stimulate the immune systems in the participants and are NOT going to cause tumor development or one to progress.
third-as you mentioned, the vaccines in the Walter Reed trial do not interfere with future treatments with Herceptin if needed.

It is your decision. But, please think about these concerns. You have come a long way. At this point, I would not want to risk too much.

I truly believe that my participation in the Walter Reed trial has given me some extra protection. As a matter of fact, I am now in North Carolina and will receive the final DHT TESTS TOMOROW. They are now offering four boosters at six month intervals and I hope to get those.

Good luck and please let us know what you decide.
Hugs,
Sandra