Re: update - what to do?
Even though the road may be bumpy at times I honor you for hanging in there !! You are a great lady !!
Have you tried putting things in a blender and making purees or smoothies? That would give you more nutrition while you work through the mouth sores.
I enjoy making juices from a variety of fruits and or vegetables. I make some of my own soups and pasta sauces. I have been making alot of juices, and a little soup for a friend who had to have her jaw wired shut after a serious bike accident. Can you drink almond milk? It is quite good and comes in a variety of flavors.
I heard ice cubes are good when a person has mouth sores. What about making some juice and putting it into ice cube trays to suck on when you feel like something cool and soothing? You can buy ready made juice and do that if you don't feel up to putting things into a blender.
I can't tell you what to do about the drugs. That is your decision, but I would take some Abraxane with Herceptin or Tykerb until the T DM1 becomes more accessible.
Good luck. I have all my fingers crossed for your success. Take good care of yourself.
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