HER2 Support Group Forums - View Single Post - update

Mary Anne in TX · 08-19-2010, 07:27 PM

Pam, the mouth sores are totally the pitts. I remember standing out on the point by my condo looking at the water and just crying giant tears, my mouth hurt so much. Then I'd get mad, eat ice, and go some more. I think when you get some relief from the mouth sores and other crumby stuff, your mind will get peaceful about which decision to make.
If you do decide on the trip, isn't there an organization that pays for your room if you have to stay over for treatment. My brain won't recall the name of the org., but I remember visiting with a patient in the radiation waiting room who was riding the bus and the bus and room were paid for by some org. Wish I could remember more. Maybe someone will know who to call.
Much love to ya, ma

08-19-2010, 07:27 PM	#6
Mary Anne in TX Senior Member Join Date: Jun 2006 Location: San Antonio, TX Posts: 2,357	Re: update - what to do? Pam, the mouth sores are totally the pitts. I remember standing out on the point by my condo looking at the water and just crying giant tears, my mouth hurt so much. Then I'd get mad, eat ice, and go some more. I think when you get some relief from the mouth sores and other crumby stuff, your mind will get peaceful about which decision to make. If you do decide on the trip, isn't there an organization that pays for your room if you have to stay over for treatment. My brain won't recall the name of the org., but I remember visiting with a patient in the radiation waiting room who was riding the bus and the bus and room were paid for by some org. Wish I could remember more. Maybe someone will know who to call. Much love to ya, ma __________________ MA in TX. Grateful for each and every day.... Diag. 12/05 at age 60 Stage II, Grade 3, 4.5 cm primary tumor ER/PR- Her2 +3 strongly positive Her2 by FISH 7.7 amplified vascular invasion Ki67 20% borderline Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew April '06 Rt Modified Radical Mas, 7 of 9 nodes positive April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense) Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense) Radiation & Herceptin Jan. 22 - March 1, 2007 Finished Herceptin Dec. 10 '08! One extra year. Port removed August, 2012. 8 1/2 years since diagnosis! 5 1/2 Years NED!