HER2 Support Group Forums - View Single Post

PatE · 08-18-2010, 05:26 PM

Hi,
I am stage iV, I had a liver met, last December my pet showed a spot on my spine L2. I wasn't in pain really didnt suspect it was there. My Onc thought we should just wait and watch. I really wasn't comfortable with that.

My liver spot was treated with Cyberknife in August 2008, 3 treatments no pain or problems. I went shopping after the third treatment. CK is very very easy! So I contacted my Rad Onc who agreed that Cyberknife could be very effective with the second spot so I had CK treatment to spine in May, 2010.

My last Pet was fantastic:

There is not a cancer related mention of my liver anymore:
"There is normal metabolic activity within the liver, spleen, kidneys, bowel, and bladder"
I didn't think this was possible, previous scans always mentioned something but dare I say my liver is cured. Who really knows.

Spine
"Image of the visualized skelton demonstrate interval decrease in size and metabolic activity involving the hypermetabolic osseous metastasis involving the left side of L2 vertebral body. The max SUV on the current study measures 3.2, previously measuring 8.9. No additional areas, etc...."

I hope this helps your comfort level with CK, make sure your Rad Onc has a machine otherwise you probably don't have a prayer of being referred for treatment. Traditional Rads aren't too happy with the new cancer machine on the block ... unfortunately if their center doesn't have the machine they make very little money.
Please email me if I can help, praying for soon to come treatment, good luck on the TDMI too I can't comment on that.
Oh I am on Herceptin weekly, I was off for four months when I got the spot on the spine due to ef problem.

08-18-2010, 05:26 PM	#8
PatE Senior Member Join Date: May 2010 Posts: 41	Re: Me again, need answers, please Hi, I am stage iV, I had a liver met, last December my pet showed a spot on my spine L2. I wasn't in pain really didnt suspect it was there. My Onc thought we should just wait and watch. I really wasn't comfortable with that. My liver spot was treated with Cyberknife in August 2008, 3 treatments no pain or problems. I went shopping after the third treatment. CK is very very easy! So I contacted my Rad Onc who agreed that Cyberknife could be very effective with the second spot so I had CK treatment to spine in May, 2010. My last Pet was fantastic: There is not a cancer related mention of my liver anymore: "There is normal metabolic activity within the liver, spleen, kidneys, bowel, and bladder" I didn't think this was possible, previous scans always mentioned something but dare I say my liver is cured. Who really knows. Spine "Image of the visualized skelton demonstrate interval decrease in size and metabolic activity involving the hypermetabolic osseous metastasis involving the left side of L2 vertebral body. The max SUV on the current study measures 3.2, previously measuring 8.9. No additional areas, etc...." I hope this helps your comfort level with CK, make sure your Rad Onc has a machine otherwise you probably don't have a prayer of being referred for treatment. Traditional Rads aren't too happy with the new cancer machine on the block ... unfortunately if their center doesn't have the machine they make very little money. Please email me if I can help, praying for soon to come treatment, good luck on the TDMI too I can't comment on that. Oh I am on Herceptin weekly, I was off for four months when I got the spot on the spine due to ef problem.