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Re: Would like to speak to someone with lymphedema
I went and looked at it to make sure I had it right. It's made by Solaris and it's called a Tribute sleeve. Solaris also makes the swell spot I use that helps channel the fluid from where it's swelling. You have to put these in your bra and you can move them around.
I'm hot all the time but I find the night sleeve to be doable. It's fairly light and not that hot. It comes with a top sleeve you put over the foam. I'm still learning to get it on by myself and I'm getting there!!
It's still working great-when I wake up in the morning you can see all the indention in your arm and my arm is down to a normal size. I have to travel next week so I'm really glad I have it to take with me.
If you need any more info please let me know and I will ask my therapist.
The baby is a friend of mines. They tried to have a child forever and were unable to. They were able to adopt Sammy Grace about 6 months ago after many disappointing let downs. Her head is like a mini me! She loves to hang with her Aunt VV 
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Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
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