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Re: Would like to speak to someone with lymphedema
Vicky, do you live anywhere near LA? I have consulted a great physician whose practice is limited to lymphedema. Emily Iker.
Also I attended a Lebed exercise program at a local cancer center. And swimming is good treatment. But not hot tubs or saunas. Avoid extreme heat.
I was at early stage but I know how you feel about this diagnosis. I found it so discouraging to have something ELSE to deal with. Keep the faith.
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Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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