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Lori R · 08-04-2010, 05:10 AM

Pam,
So sorry to hear about the disconcerting TMs.

As we know....waiting is the worst, so I think you should start dialing for data....I encourage you to make contact with the TDM-1 folks in Iowa. Even if you don't use it, understanding who to contact and how you would go about entering the trial would provide you with another option. You know, our fall back lists that we love to keep.

If you decide to give Abraxane a try....I'm a cheerleader for it. I was on it for 18 weekly cycles. It was very tolerable. In my office, there are women that remain on it for extended periods of time.

The positive aspect of TMs is that you have this time to gather options, ponder how YOU want to manage this disease and have some ideas lined up before you speak with your Onc.

Thinking of you so much...Lori

08-04-2010, 05:10 AM	#15
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	Re: Trying not to panic Pam, So sorry to hear about the disconcerting TMs. As we know....waiting is the worst, so I think you should start dialing for data....I encourage you to make contact with the TDM-1 folks in Iowa. Even if you don't use it, understanding who to contact and how you would go about entering the trial would provide you with another option. You know, our fall back lists that we love to keep. If you decide to give Abraxane a try....I'm a cheerleader for it. I was on it for 18 weekly cycles. It was very tolerable. In my office, there are women that remain on it for extended periods of time. The positive aspect of TMs is that you have this time to gather options, ponder how YOU want to manage this disease and have some ideas lined up before you speak with your Onc. Thinking of you so much...Lori __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)