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Chelee · 08-03-2010, 05:58 PM

Unregistered, I had a baseline PET/CT when first dx with bc the showed activity on both femurs. It was highly recommended by two cancer centers that I have MRI's to rule out mets to femur. But my cancer center talked me out of it telling me it could be caused by a number of things. (Prior to this I had been seeing a neurologist for brusitis in hips.) My onc was against anymore scans at that time so I requested a bone biopsy. Again I was talked out of that. Onc said a biopsy to hip was so painful and in my case not necessary. I was newly dx and scared and just wanted to get trt going so I let it go.

It wasn't until 3.5 yrs later those same places that lit up on baseline showed a big mass on right femur that no doubt had been there on baseline scan. So I was stage IV...which would of changed things with my treatment plan. For one I would of remained on Herceptin and might still be NED...but I'll never know now.

Chelee

08-03-2010, 05:58 PM	#8
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: new here suggestions welcome Unregistered, I had a baseline PET/CT when first dx with bc the showed activity on both femurs. It was highly recommended by two cancer centers that I have MRI's to rule out mets to femur. But my cancer center talked me out of it telling me it could be caused by a number of things. (Prior to this I had been seeing a neurologist for brusitis in hips.) My onc was against anymore scans at that time so I requested a bone biopsy. Again I was talked out of that. Onc said a biopsy to hip was so painful and in my case not necessary. I was newly dx and scared and just wanted to get trt going so I let it go. It wasn't until 3.5 yrs later those same places that lit up on baseline showed a big mass on right femur that no doubt had been there on baseline scan. So I was stage IV...which would of changed things with my treatment plan. For one I would of remained on Herceptin and might still be NED...but I'll never know now. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.