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Re: Trying not to panic
Pam,
I am so sorry you are facing this. My hope for you is that you get on the T-DM1 as soon as possible. When I finished my initial treatment, my onc. told me, "Not that you need it, but if you do there is a new treatment (T-DM1) that is being very successful." I believe that 25% number is coming from trials where it has been given to all BC patients, not just the ones who are HER2+. When getting one of my treatments, I met a young lady down at Mayo in Jacksonville who was in the T-DM1 trial down there. She was doing great and said there were no side effects. I don't know how far you will have to travel, but I am sure this will not detur you. Lots of hugs!!!
Sandra
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Diagnosed: 7/25/08 ~ age 63, no family history
Surgery: 8/14/08 Bilateral mastectomy; tumor left breast, node dissection; right prophylactic with expanders: 1/12/10 latisimuss dorsi flap on left side: 9/22/10 implants in
Pathology Report: ER/PR-; HER2+ (3+); Grade 3, StageIII; 3cm tumor plus 21/21 lymph nodes positive; 5cm DCIS
Chemo: A/C; Taxol/Herceptin/Tykerb; phase II study at Mayo adding Tykerb for early stage
Radiation: 25 rads
Vaccine: Walter Reed GP2/AE37 vaccine study ~ last booster 9/17/2012
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