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Jackie07 · 07-29-2010, 07:03 PM

Julie2,

Since I've had experienced toxicity of chemo/Herceptin and had to stop my treatment at 22 weeks in 2008 because of lowered MUGA score, I wondered if your doctor (and most doctors) was taking into account the possible side effects caused by more Herceptin-based treatment.

Another possible reason for your doctor's response might have been that she didn't want you to be disappointed in case you don't get to be enrolled/approved for the TDM1 expanded trial for whatever reason. Since TDM1 is most likely going to be approved next January (at least that seemed to be the consensus), why not wait instead of going through all the motions.

It's just my guess.

07-29-2010, 07:03 PM	#6
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,809	Re: Please give me some suggestions Julie2, Since I've had experienced toxicity of chemo/Herceptin and had to stop my treatment at 22 weeks in 2008 because of lowered MUGA score, I wondered if your doctor (and most doctors) was taking into account the possible side effects caused by more Herceptin-based treatment. Another possible reason for your doctor's response might have been that she didn't want you to be disappointed in case you don't get to be enrolled/approved for the TDM1 expanded trial for whatever reason. Since TDM1 is most likely going to be approved next January (at least that seemed to be the consensus), why not wait instead of going through all the motions. It's just my guess. __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe