HER2 Support Group Forums - View Single Post - Decided to post...because I know you will understand...

sassy · 07-28-2010, 08:23 PM

Maureen,

Once treatment ends, we all feel a little lost, very vulnerable, and as if we are no longer doing anything to actively fight. So its normal for fears to increase. I went through something similar--only my hip. I wouldn't tell anyone--didn't want to validate the fear. Waited until my next apt., told the onc, went straight to x-ray--and found a bone spur on the upper portion of the hip socket!

The fear will lessen in time. I will keep you in my prayers, praying for clean scans and aches other than cancer.

Isn't it wonderful to be able to come here and voice our thoughts, fears, doubts, troubles and know everyone understands and cares!

Deep breaths, we're right there with you.

07-28-2010, 08:23 PM	#10
sassy Senior Member Join Date: Sep 2005 Location: Mountains of Virginia Posts: 2,267	Re: Decided to post...because I know you will understand... Maureen, Once treatment ends, we all feel a little lost, very vulnerable, and as if we are no longer doing anything to actively fight. So its normal for fears to increase. I went through something similar--only my hip. I wouldn't tell anyone--didn't want to validate the fear. Waited until my next apt., told the onc, went straight to x-ray--and found a bone spur on the upper portion of the hip socket! The fear will lessen in time. I will keep you in my prayers, praying for clean scans and aches other than cancer. Isn't it wonderful to be able to come here and voice our thoughts, fears, doubts, troubles and know everyone understands and cares! Deep breaths, we're right there with you. __________________ Rhonda (Sassy) dx age 45 DX 2/15/05 Stage IIb (at surgery)restaged IIIa Left mast .9cm tumor 5 of 14 nodes Triple Positive 4 DD A/C 12 Taxol/Herceptin 33Rads Strange infect mast site one year aft surg, hosp 1 wk Herceptin for total of 18 months Lupron Monthly 4 yrs Neurontin for aches, pains and hot flashes(It works!) Ovaries removed 11/09 stop Lupron and Neurontin Arimidex 6 yrs (tried Femara, no SE improvement) Tried Exemestane-hips got so bad could hardly walk Back to Arimidex for year seven Zometa 2X Annual for 7years, Lasix Stop Arimidex 5/13 Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa 5/14 Start Tamoxifen 3/15 Stem cell transplant to stimulate femur bone growth/healing 5/15 Complete fracture of right femur/Titanium rods both femurs 9/16 Start Evista stopTamoxifen 3/17 Stop Evista--unwelcome side effects! NED and no meds....... 14YEARS NED!