HER2 Support Group Forums - View Single Post - feet swelling..can it be from herceptin and heart?

Jackie07 · 07-27-2010, 01:13 PM

Candlegranny,

I was half way through chemo when I experienced 'swollen knees' after my 'walking' exercise. My oncologist did not say anything. I naturally cut down my exercise and tried to stay still more so there wouldn't be more fluid cumulating in that area.

After chemo was complete, I was given 'weekly' Herceptin until the MUGA score showed continued decline. So I had to be taken off Herceptin at 22 weeks (18 weeks combined chemo and 4 weekly Herceptin.)

The fluid gets cumulated in the tissue when our heart is too weak to pump the fluid back.

I've heard that the tingling is more related to the Taxane stuff because it affects the nerve endings.

I wear my compression sleeve and glove daily for at least 8 hours - and any time when I'm doing anything strenuous. Do a 'lymphedema' search and you'll find some of the discussions previously posted on how to manage lympedema.

Hope you are feeling/getting better. Don't forget to talk to your doctor/nurse/lymphedema therapist about those problems.

07-27-2010, 01:13 PM	#3
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,809	Re: feet swelling..can it be from herceptin and heart? Candlegranny, I was half way through chemo when I experienced 'swollen knees' after my 'walking' exercise. My oncologist did not say anything. I naturally cut down my exercise and tried to stay still more so there wouldn't be more fluid cumulating in that area. After chemo was complete, I was given 'weekly' Herceptin until the MUGA score showed continued decline. So I had to be taken off Herceptin at 22 weeks (18 weeks combined chemo and 4 weekly Herceptin.) The fluid gets cumulated in the tissue when our heart is too weak to pump the fluid back. I've heard that the tingling is more related to the Taxane stuff because it affects the nerve endings. I wear my compression sleeve and glove daily for at least 8 hours - and any time when I'm doing anything strenuous. Do a 'lymphedema' search and you'll find some of the discussions previously posted on how to manage lympedema. Hope you are feeling/getting better. Don't forget to talk to your doctor/nurse/lymphedema therapist about those problems. __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe