HER2 Support Group Forums - View Single Post - Would like to speak to someone with lymphedema

Neb · 07-25-2010, 02:33 PM

There is a discussion forum on breastcancer.org that has provided me with a great amount of information and support on lymphedema. Like you, lymphedema scared me more than the surgery and it took a lot of convincing from the surgeon and my husband to let them take my lymph nodes. I got that pat answer, "Oh,only about 2% of breast cancer patients get lyphadema." Well, if that's true, there is a hugh number in that 2%. I've been dealing with it now for about 2 years, 6 months after surgery, (actually, fluid problems immediately after surgery). I've learned to live with it. It is a nuisance but I'm thankful for being able to do what I can do.

I wear my sleeve most of the time and I have a night sleeve. I hated wrapping. When I do the exercises, it gets better but I'm not as diligent about that as I should be. I'm also in Tennessee.

07-25-2010, 02:33 PM	#6
Neb Junior Member Join Date: Jul 2010 Posts: 1	Re: Would like to speak to someone with lymphedema There is a discussion forum on breastcancer.org that has provided me with a great amount of information and support on lymphedema. Like you, lymphedema scared me more than the surgery and it took a lot of convincing from the surgeon and my husband to let them take my lymph nodes. I got that pat answer, "Oh,only about 2% of breast cancer patients get lyphadema." Well, if that's true, there is a hugh number in that 2%. I've been dealing with it now for about 2 years, 6 months after surgery, (actually, fluid problems immediately after surgery). I've learned to live with it. It is a nuisance but I'm thankful for being able to do what I can do. I wear my sleeve most of the time and I have a night sleeve. I hated wrapping. When I do the exercises, it gets better but I'm not as diligent about that as I should be. I'm also in Tennessee.