HER2 Support Group Forums - View Single Post - Will we be changing the name of this site to GRB7 support soon?

Lori R · 07-25-2010, 12:54 PM

Hi gang,
I question whether too much information "in the end" proves to be useful. I've come to the conclusion for me....bring it on, the more random details about my cancer the better.

As I face my 3rd round of chemo, anything that would help me select the next step or possibly help me understand why Herceptin didn't do the trick would help me feel more empowered.

Currently frustrated wtih the feeling that my Drs. at taking a swing at the pinata hoping to win the prize.

I would like to know as many details as possible.

07-25-2010, 12:54 PM	#10
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	Re: Will we be changing the name of this site to GRB7 support soon? Hi gang, I question whether too much information "in the end" proves to be useful. I've come to the conclusion for me....bring it on, the more random details about my cancer the better. As I face my 3rd round of chemo, anything that would help me select the next step or possibly help me understand why Herceptin didn't do the trick would help me feel more empowered. Currently frustrated wtih the feeling that my Drs. at taking a swing at the pinata hoping to win the prize. I would like to know as many details as possible. __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)