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Old 07-23-2010, 11:54 PM   #2
Jackie07
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Join Date: Jan 2008
Location: "Love never fails."
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Re: One more to go...and a question

Congratulations, Patrice, on getting to complete your Herceptin treatment in just a few weeks. Don't forget to pat yourself on the shoulder and go celebrate with your friends and family!

Ideally, the long treatment of Herceptin will have caused 'all' the cancer cells to be eliminated. So there's nothing 'bad' in your body that need to be 'fought' any more. This is the purpose (the 'aim', the 'goal') of this 'targeted' and 'systemic' therapy. 'All' the bad guys (cancer cells) have been 'picked up' and wiped out from your body.

Your doctor will schedule routine check-ups which will include blood tests, scans, and physical exams. If there is anything 'new', they can use either Herceptin or Herceptin combined with other meds such as Tykerb, Novelbine,...

I went on four years withouth knowing there was a (local-regional)recurrence growing right out of the original lumpectomy site. My surgeon was more upset than me when the 'bigger' tumor was confirmed in 2007 (she thought she had had a 'clean' margin, but evidently she had missed something and everyone elses misinterpreted the follow-up mammograms.) But life goes on. Just another surgery, another round of treatment. Three more years later, I'm still here - lost some bone density, but otherwise strong and healthy.

Never cared that much about the term 'NED' and wouldn't dwell on the concept too much because of my past experience. But there are many of us here on the Board (and many who have left the Board) who have been 'NED' (No Evidence of Disease)for many years.

Some (like Christine - the founder of this wonderful site) stayed NED even after having had brain mets. Several others have treated liver mets or mets in other areas. I had a scare last fall when my neck was hurting and experienced 'vertigo' after doing exercise. I was so sure there was metastasis on my neck - turned out to be 'cervical vertebrae degeneration'. Not a good thing - it hurts when I am not careful - but it's not cancer.

Staying active (which builds up both our bones and our immune system), staying positive (which increases the realease of endorphin), and staying vigilant (which helps catch things early) will help us guard against the villain.

You are absolutely right to be asking these questions. But trust me, our body is so much stronger and more resiliant than we give it credit for. There will be plenty in your body to 'fight' when there's a need. Though most likely you will be joining the many women here to be celebrating 'NED' year after year.

In the meanwhile, I'll continue to 'eat, drink, and be merry...' As the late Dr. Joe Weldon Bailey had stated (with a big smile) upon learning his 'terminal' skin cancer: "We are all 'terminal'!"

Again, congratulations!
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Jackie07
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NICU 4.4 LB
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3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
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hptc hemangioma
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hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
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1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
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Last edited by Jackie07; 07-24-2010 at 12:02 AM..
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