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Re: It's back...
Sheila, Thanks for taking the time to reply...especially when I know how full your plate is right now. Your so kind. The onc I just went to told me the same thing you did...leaving the node is a good way to moniter trt.
After you had the node removed...how long was it before the another nodes popped back up? If I thought I could get a good yr out of it I would go for it versus starting chemo right now. Since this is a marathon as they all say...and my CA27.29 is so low (15) I was hoping to get lucky enough to maintain a while on herceptin/Zometa/Femara alone. (I just started the Femara and have hopes maybe it will shrink that node?) (I think I stopped the Navy Beans too soon.) But started having lung issues and was on oxygen.
I did find a TDM1 trial which guarantees me the drug...however I found out I would not qualify for it since I haven't had Adria.
I just wished they would get TDM1 out so anyone that needs it could have it. If anyone has had Cyberknife to just one node in axilla pls reply. (Or PM.)
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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