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Re: It's back...
Margerie, I'm not sure who's node it is...but if you know anyone that wants it just let me know. lol I still haven't made a decision...things keep changing. Everything I was told about the trial has changed. I was told they would accept all the scans I just had...but now I'm told I have to do all of them down there. (I just had two PET/CTs in the last 3 months...why another one)
I was also told there is a 21 day washout period so I have to go off Herceptin/Zometa/Femara. Makes me nervous to be off these drugs...especially Herceptin. I've only been on the Femara 13 days...it hasn't even had a chance to work yet. I will be very disappointed to go thru all this just to be put in the arm with Xeloda/Tykerb. I can get that combo right at my centre without having the washout period. The fun never stops in cancerland.
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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