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Re: Report went from her2 - to equivocal to her2 +
Pie,
The other ladies are right on! It is your right to know and understand everything that is happening to you, and there is a lot going on.
This is a great time to learn how to be your best advocate. I found that my oncology nurses are better at answering questions about side effects and remedies than the doctors. Don't ever be afraid to ask your doctor or nurse if you have questions.
I have copies of all my records, and was glad I did when I recently went for a second opinion.
We are here for you and will help in any way we can.
Stay strong and try not to worry too much. It really zaps the energy you need right now.
Look forward to hearing from you soon,
Emelie
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Nov. 2006-IDC with Her2 +++
A/C for 3 rounds
Dec. 2006- Herceptin and Taxotere
March 2007-MRM with 8 of 14 lymph node involvement
May 2007-36 Rads
Sept. 2007- Stopped Herceptin
Jan. 2010- CT scan shows enlarged lymph nodes in sternum and lung involvement
Feb. 2010-PET scan shows mets to liver, lung, lymph nodes and bone
Feb. 2010- Started Herceptin/Taxol and Zometa
April 2010-PET scan clear. Herceptin and Zometa
June 2010- Stopped Herceptin continue Zometa and still NED
August 2010-Back on Herceptin and Zometa every 3 weeks
August 13, 2010- Had another port placed
August 24, 2010- PET scan clear. Herceptin and Zometa every three weeks
Nov. 2010-PET scan clear
Feb. 2011-Brain MRI clear
March 2011- PET scan clear
May 2011- PET scan clear
Sept. 2011- PET, Mammo, Bone Scan all clear- Herceptin only
March 2012-Recurrence in lungs and tumor around pota hepatis artery. Added Navelbine to herceptin
April 2012- Entered palliative care
June 5, 2012-Entered hospice care
Planning my memorial
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