HER2 Support Group Forums - View Single Post

Jackie07 · 07-18-2010, 03:42 PM

Chelee,

I vote for entering the trial. Both treatment options are good ones. And if TDM-1 shows big advantage, they might stop the trial and give everyone TDM-1. It's quite possible since it's already a PhaseIII and TDM-1 has been showing good results.

As for the node - I don't know how big it is or anything. But I think Lymphedema is something can be managed. I've been wearing my compression sleeve and glove daily (supposed to wear them at least 8 hours a day) after I contracted cellulitis. It's not bad at all. I was fitted for my 2nd pair just 10 days ago. And the lady told me the new ones can be washed in the washer. (I've been handwashing mine every night.)

But it's true that it can be a good gauge if you leave it while undergoing treatment.

I just thought that you should go for the trial. Just my own opinion.

07-18-2010, 03:42 PM	#30
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,809	Re: It's back... Chelee, I vote for entering the trial. Both treatment options are good ones. And if TDM-1 shows big advantage, they might stop the trial and give everyone TDM-1. It's quite possible since it's already a PhaseIII and TDM-1 has been showing good results. As for the node - I don't know how big it is or anything. But I think Lymphedema is something can be managed. I've been wearing my compression sleeve and glove daily (supposed to wear them at least 8 hours a day) after I contracted cellulitis. It's not bad at all. I was fitted for my 2nd pair just 10 days ago. And the lady told me the new ones can be washed in the washer. (I've been handwashing mine every night.) But it's true that it can be a good gauge if you leave it while undergoing treatment. I just thought that you should go for the trial. Just my own opinion. __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe