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Creatinine levels
Update on treatment- I met with the cardiologist on Wed. and found that my LVEF was actually 49-down from 64. I have not had a Herceptin treatment since June 14th. I have started taking CopQ10 at 200 mg a day. He said anything below that amount will do nothing. He said there is no data to show it improves heart functioning, but also said it could not hurt. I have walked throuhout the treatments, and we hike the mtns of CO. regularly, so I am very active.
Also, my creatinine levels have gone from .7-1.1 this last visit on Thurs. went ahead with the Zometa, but was told that they are watching it closely.
I am finally meeting with my onc. to discuss the second opinion I got from an onc. at U of C who said he would maintain me on Herceptin once my ticker is better. My onc. wants to stop Herceptin altogether and scan regularly for another recurrence.
So, I have a half hour appt. scheduled for 7:30 Tues. morning to discuss all this stuff.
I really do feel overwhelmed at times trying to make these decisions. There is just no data out there for me to point to and say "this is what we need to do".
Anyway, if anyone knows how to improve kidney function, other than lots of water which I already do, please let me know.
Have a great weekend everyone,
Emelie
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Nov. 2006-IDC with Her2 +++
A/C for 3 rounds
Dec. 2006- Herceptin and Taxotere
March 2007-MRM with 8 of 14 lymph node involvement
May 2007-36 Rads
Sept. 2007- Stopped Herceptin
Jan. 2010- CT scan shows enlarged lymph nodes in sternum and lung involvement
Feb. 2010-PET scan shows mets to liver, lung, lymph nodes and bone
Feb. 2010- Started Herceptin/Taxol and Zometa
April 2010-PET scan clear. Herceptin and Zometa
June 2010- Stopped Herceptin continue Zometa and still NED
August 2010-Back on Herceptin and Zometa every 3 weeks
August 13, 2010- Had another port placed
August 24, 2010- PET scan clear. Herceptin and Zometa every three weeks
Nov. 2010-PET scan clear
Feb. 2011-Brain MRI clear
March 2011- PET scan clear
May 2011- PET scan clear
Sept. 2011- PET, Mammo, Bone Scan all clear- Herceptin only
March 2012-Recurrence in lungs and tumor around pota hepatis artery. Added Navelbine to herceptin
April 2012- Entered palliative care
June 5, 2012-Entered hospice care
Planning my memorial
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