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Re: Scan Results - Another Battle
Lori - I am so sorry to hear about your new liver met. Sounds like you are getting some great advice and I hope you are able to blast it to oblivion.
I just wanted to add that there IS data supporting the Herceptin/Tykerb combo. It just came out at last year's San Antonio conference. I think Lani posted about it here. My onc is an outside the box thinker and he had me on the H/T combo well before the data came out. It did a great job for me for nearly a year. And my insurance DID approve the combo. If your insurance doesn't approve it, GSK has a program called "Tykerb Cares" whereby you can get it at a reduced price. If this is the treatment you want, go for it. It could be your magic bullet.
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4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
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