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Old 07-07-2010, 12:24 PM   #29
Sheila
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Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Re: Another Twist in the cancer

Thank you all for your thoughts and prayers...this has taken a toll but I am still trying to increase my lung capacity and inflate the lower lobe...I am back to walking, at a slower pace, but up to 1 mile a day...a long way from a month or 2 ago! The heat makes it difficult, so its all about timing. I completed my first cycle of metronomic chemo, Cytoxan and Methotrexateand do notice some shrinkage of the axillary nodes and neck nodes....I am always a quick responder at the beginning. I am hoping the scans will show the mediastinal nodes and the ones around the pulmonary artery have shrunk! All in hoping that this will keep disease progression at bay until i can get TDM-1....
This has truly been a trying year with my parents, myself and my son....his house was demolished last week, so his wife and him are designing their "new" house. He is off work so he has plenty of time to worry about the what ifs....I have tried to tell him many times, its not easy, but you deal with the hand you are dealt, try to make the best of it, and remain positive.....hard to do, but we have all been there, some of us more than once.
Hoping the next half of the year is more peaceful....you are all in my thoughts and prayers!
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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