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Becky · 06-22-2010, 04:32 AM

Hi Suzanne!

I am so happy everything is going well for you. I was just thinking about you but I figured you were doing just fine.

I did want to comment on your reference to staying on the AI alittle longer. I am on Arimidex. It will be 5 years in September (was on Tamoxifen until I got my ovaries removed). I just saw my onc on June 4 and he said he wants to keep me on another year and we'll go from there. He is hoping that a trial will finish up that will give some data that staying on is beneficial. He says that if the data says that it isn't, then we will stop then. So, I think I will be on at least one extra year and I think if there is still no data, he will continue. I have no appreciable side effects from it and I was 45 when diagnosed.

Sometimes I think about whether or not to continue as I wasn't greatly hormone positive (only ER+ - 50%) but for now, I'm good (and my 5 yrs on it isn't up until September anyway).

Always remember that being a survivor means you are still alive to live.

Love, Becky

06-22-2010, 04:32 AM	#3
Becky Senior Member Join Date: Sep 2005 Location: Stockton, NJ Posts: 4,179	Re: been awhile..doing great Hi Suzanne! I am so happy everything is going well for you. I was just thinking about you but I figured you were doing just fine. I did want to comment on your reference to staying on the AI alittle longer. I am on Arimidex. It will be 5 years in September (was on Tamoxifen until I got my ovaries removed). I just saw my onc on June 4 and he said he wants to keep me on another year and we'll go from there. He is hoping that a trial will finish up that will give some data that staying on is beneficial. He says that if the data says that it isn't, then we will stop then. So, I think I will be on at least one extra year and I think if there is still no data, he will continue. I have no appreciable side effects from it and I was 45 when diagnosed. Sometimes I think about whether or not to continue as I wasn't greatly hormone positive (only ER+ - 50%) but for now, I'm good (and my 5 yrs on it isn't up until September anyway). Always remember that being a survivor means you are still alive to live. Love, Becky __________________ Kind regards Becky Found lump via BSE Diagnosed 8/04 at age 45 1.9cm tumor, ER+PR-, Her2 3+(rt side) 2 micromets to sentinel node Stage 2A left 3mm DCIS - low grade ER+PR+Her2 neg lumpectomies 9/7/04 4DD AC followed by 4 DD taxol Used Leukine instead of Neulasta 35 rads on right side only 4/05 started Tamoxifen Started Herceptin 4 months after last Taxol due to trial results and 2005 ASCO meeting & recommendations Oophorectomy 8/05 Started Arimidex 9/05 Finished Herceptin (16 months) 9/06 Arimidex Only Prolia every 6 months for osteopenia NED 18 years! Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"