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Old 06-21-2010, 06:40 AM   #1
tlwelch
Member
 
Join Date: May 2010
Location: Philadelphia PA
Posts: 7
Got a Xeloda administration question

Hi all still relatively new here so if this post should be in some other location let me know.

So I'm in my very first cycle of Tykerb/Xeloda since being diagnosed with the recurrence. I have about a week and a half of experience under my belt so far. I take 1250 of the Tykerb and 3500 of the Xeloda daily. Overall symptoms have been mild, but definitely have presented themselves. All the standards the gambit of gastrointestinal issues, the dry irritation and sensitivity to temperature in the hands and feet. So far they are tolerable especially if I use the udderly smooth cream (which I use daily) or take immodium (which I've only had to do once).

My question is actually about the Xeloda administration. I planned to ask my onc when I see him for my first follow-up appointment on July 1. But then I remembered I had a whole group of very experienced people to ask questions of, so I came here first.

I was told take the Xeloda 30 minutes after eating. Sounds simple. But I read all the literature provided by Roche, the say "within 30 minutes after the end of the meal." To me that would imply I could take the meds at the end of the meal without delay. So I'm curious, is some wait time required, or is anytime in the 30 minute window (including immediately at the end meal) an acceptable time to take the meds?

I ask primarily, because at this point I've been getting my self engaged in something to run out my thirty minutes and occasionally get so distracted that it's an hour before I remember. I know if I took the meds right at the end of the meal I'd be less likely to get distracted, wait too long, or possibly even forget at some point.

Any help input or advise would be greatly appreciated. Thanks Toni
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Toni

Age 40, Dx 2/09 with locally advanced Left breast IDC, grade 3, ER-, PR-, Her2+2, stage 3b tumor >5cm, lymph node involvement in interior chest wall, and axillary nodes
March to June 2009 Dose Dense Chemo (March and April 4x Adriamycin/Cytoxan, May and June 4xTaxol/Herceptin) Herceptin continued every 3 weeks through April 2010
July 2009 double mastectomy, right prophylactic, temporary expanders placed for delayed reconstruction
Oct 2009 Rt expander removed due to infection
Nov to December 2009 Radiation tx
April 2010 PET/CT shows active disease in interior chest wall, new growth in breast adjacent to expander
May 2010 biopsy confirms active ER-/PR-/Her2+2 cancer stage 3c
May 2010 left expander removed so as not to interfere with long-term diagnostic follow-up while being treated
June 2010 finished review of treatment options and second opinion appointments
June 2010 start Tykerb/Xeloda
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