[jhandley]

Hi Emilie
I was on herceptin for 4 years and then went off it. 8 months later scans showed multiple small mets in liver and small pleural effusion. I have been back on it (and abraxane) for 8 weeks and the pleural effusion has cleared and I will have a CT scan in 3 days to see if I am back in remission.
I would be very, very careful about going off herceptin. Get some Life Extension Foundation Q10 for your heart and your MUGA will improve to normal quickly..
I went off it to have a break from the sinus problems and I used to feel a bit down on the day I had herceptin..but I am prepared to put up with these minor side effects to stay in remission,
Cheers
Jackie (down under)