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Re: Slamon second opinion
Hi JB - Good to see you post on this site! The ladies and gentleman here are among the most informed anywhere. I'm sure they'll be along soon to offer you some sound advice.
As you know, I went to MD Anderson for a second opinion last October. They have an IBC clinic - you may want to consider heading there for a second opinion with someone who specializes in IBC. The secret to getting in there is to tell them that you are interested in joining one of their clinical trials. An appointment will magically open up.
Thinking of you and hoping the surgery goes well. Let me know if there is anything I can do. I'm just around the corner.
With love,
Courtney
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4/17/08: Dx Stage IV at age 30 - extensive mets to liver, lungs, and bones. Er/Pr-, Her2+++
April 08-Aug 08:Taxotere, Cytoxan, Herceptin, Zometa - complete response!
Sept 08-Dec 08: Herceptin +Zometa for maintenance.
Jan 09-April 09: Brain mets. Add Tykerb. Watch and wait.
April 09: Gamma Knife 10 brain mets, add Xeloda.
Sept 09: Gamma Knife to 1 brain met.
Nov 09- April 10: Lung progression, add Gemzar to Herceptin, Zometa.
May 10- Sept 10: HER2 Vaccine Trial
Sept 10: Add Tykerb for more brain mets.
Oct 10: Gamma Knife to 7 brain mets.
Dec 10: Switch from Zometa to Denosumab.
Jan 11: Gamma Knife to 3 brain mets.
March 11: Gemzar/Herceptin for lung/bone progression.
April 11: More brain mets - Intrathecal Herceptin
June 11: Ixempra/Herceptin for lung, soft tissue progression.
Aug 11: Gamma Knife
Sep 11: Abraxane/Herceptin
Future: NED
Send me a PM if you'd like to follow my journey on Caringbridge.
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