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Old 06-07-2010, 06:30 PM   #2
Becky
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Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
Re: how do we find distant metastases from breast cancer

Many doctors think the same way yours does, wait if symptoms occur before scanning and using mammogram or other imaging for the breast. My doctor uses these methods as well and I personally agree due to not getting the radiation in scanning (and I had a more than double recurrence rate than your wife).

I can't comment on the insurance issues as mine has been good to me on getting other breast imaging outside of mammograms (such as MRI or BSGI (Breast Specific Gamma Image)).

Its scary in the beginning and you have to get to a new normal that really does become normal again with time. I am still here and I had nodes involved and she will be here too.

Also, if you are not comfortable not getting scans, discuss this with your doctor. Many will scan in the beginning if you really want it and after a year or two, you and your wife may feel more comfortable to stop then or continue. Its all about your comfort level, not your doctor's comfort level (and your doctor will feel more comfortable if you and your wife are more comfortable - squeaky wheel gets the oil).

I still feel this is a personal decision - scanning and tumor markers (which my doctor does).

I hope this helps.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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