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Karen Wheel · 06-03-2010, 02:47 PM

An update for you all ---

Didn't get my MRI --- ugh! Long story - but they are now going to order a PET scan as I don't want to go thru the "prevention" the day before and morning of the MRI with taking cortizone. They said I didn't have to take it anymore for my treatments with Herceptin (6 months ago!) as we determined it appeared I was allergic to the steroid and not the Herceptin. So, of course putting two and two together --- Herceptin with steroids creates a reaction. Herceptin without steroids --- no reaction. Hummm.... to me that means = allergic to steroids!? Well, they said that I should have known that I had to take the steroid for the MRI ---ugh! So, no test. I'm actually more afraid to have the MRI with the steroids as I might have a worse reaction than I did last time (had a MRI in Nov. and did feel crappy for a week or two after!) so.... no MRI. Still waiting on a date for the new PET scan.

However, bone scan, ultrasound to the abdomen were clear. So, I think things are ok.
Oh, had a follow up for the radiation and they said the pain could be still coming from the effects of radiation - so you all were right on with the advise (as usual!).

Thanks again - I'll let you know how the PET goes when I get it scheduled.

:-) Karen

06-03-2010, 02:47 PM	#23
Karen Wheel Senior Member Join Date: Jul 2009 Location: Sardegna, Italy Posts: 362	Re: Breast pain and strange lumps? An update for you all --- Didn't get my MRI --- ugh! Long story - but they are now going to order a PET scan as I don't want to go thru the "prevention" the day before and morning of the MRI with taking cortizone. They said I didn't have to take it anymore for my treatments with Herceptin (6 months ago!) as we determined it appeared I was allergic to the steroid and not the Herceptin. So, of course putting two and two together --- Herceptin with steroids creates a reaction. Herceptin without steroids --- no reaction. Hummm.... to me that means = allergic to steroids!? Well, they said that I should have known that I had to take the steroid for the MRI ---ugh! So, no test. I'm actually more afraid to have the MRI with the steroids as I might have a worse reaction than I did last time (had a MRI in Nov. and did feel crappy for a week or two after!) so.... no MRI. Still waiting on a date for the new PET scan. However, bone scan, ultrasound to the abdomen were clear. So, I think things are ok. Oh, had a follow up for the radiation and they said the pain could be still coming from the effects of radiation - so you all were right on with the advise (as usual!). Thanks again - I'll let you know how the PET goes when I get it scheduled. :-) Karen __________________ Karen Wheelhouse Age: 46 Facebook id: Karen Wheel 2-09 – Age 44 -Biopsy-Cancer 3-09 – Right Quadrantectomy. Clear margins. 3 lymph nodes taken - all clear Tumor results: Stage 1, 1.5 cm, Her2 +++ Est positive 80% - Prog 10% - Ki67 postive 30% 4-09 – Became a vegan! pH balance of body - cancer can't grow in neutral pH! 4-09 Started Herceptin & Chemo (9 weeks of Navelbine ) FYI - when coupled with Herceptin has the same results as more toxic chemo. No brainer! 8-09 - 30 RADS 9-09 - Said NO to hormone therapy 4-10 Finished Herceptin!!!! 7-10 PET Scan & other exams .... All clear! YIPPEE!!!! 11-10 Breast, organ Ultrasounds and lung x-rays all clear no changes ... NED! 2-25-2011 --- 2 years from surgery and NED!!!!!! 7-2011 Clear bone scan and full body and head MRI! NED! NED! NED! ;-)[/SIZE]