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Re: New to the Group
Hi Tracie, I am so sorry you had to join our group...but there is no better place for information and support when your dealing with Her2 bc then this board. I know how overwhelmed you must be feeling...we have all felt like that. It's so much to take in when first dx...your world as you know it has been turned upside down. But it sounds like you have a good team of doctors and a good plan of action. Stick around here and you will see how many success stories there are. Ignore any stats your onc has told you...or any you read online...they do not include so many of the newer drugs which includes Herceptin. Herceptin alone has changed that stats in such a big way for us Her2 woman. So hang in there, you can and will get through this. We are all here for you.
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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