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Old 05-23-2010, 03:53 AM   #38
fullofbeans
Senior Member
 
Join Date: Jan 2007
Location: UK
Posts: 617
Re: Bad news, no longuer NED

Thank you so much for your support. It is especially appreciated as I am fighting this almost alone, I have only told two friends and have not yet told my family (my mum is 69y/o). When I do start telling I want to have formulated a plan of action we can all focus on and thank you Bonnie for reminding me that under no circumstuamces should you loose hope. I do want a forever remission and I am looking hard at options to get me there.

But basically I am going onMonday to the hospital and I am not leaving til I have been radiated..I had 1 node for 2 weeks then 2 nodes last week and now I can feel 3 or 4..this is ridiculous. No I cannot wait any longer without loosing my sanity.


The wasted two weeks to see if it was an infection was I think terribly unprofessional, now that i think about it how could they do that when I did not show any other sign than a sore throat, no fever no elevated white cells..you find yourself wondering how these people think and they are suppose to be top oncologist?? if it had been their daughter they would they have thought better check that supraclav node darling since the statitic of people without cancer are at 68% neoplastic at biopsy..so what was ever my chance..

I should add to my quote trust yourself first but I have to transform my anger into something positive and make sure that from now on..
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama

Last edited by fullofbeans; 05-23-2010 at 04:05 AM..
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