HER2 Support Group Forums - View Single Post - Hoarssness of voice and right supraclavicular node enlarged: help!!

fullofbeans · 05-18-2010, 05:25 AM

StephN,

You are right I will demand a ultrasound at the minimum.

I spoke to the registrar this morning and I am being seen at 11am tomorrow. I asked what was the point of seeing her instead of going straight for the ultrasound she said that they had to see me before being sent for an ultrasound (I know this is not true) but I will go along with the flow and make them give me an ultrasound. She said that the fact that the first one did not grow more since the 5th May is good.. but I really don't think that the appearance of the second one is good..she said it is still very likely to be an infection.

yes I still have my tonsils. Don't think it is mono because except for the worry which is bringing me down and sucking up my energy, I am not feeling very tired. But my neck is quite sore on the right side particularly which is why I have managed to wait for 3 weeks so far since it actually appeared. But the more I read about it the more I think it is ridiculous to make me wait.

05-18-2010, 05:25 AM	#30
fullofbeans Senior Member Join Date: Jan 2007 Location: UK Posts: 617	Re: Hoarssness of voice and right supraclavicular node enlarged: help!! StephN, You are right I will demand a ultrasound at the minimum. I spoke to the registrar this morning and I am being seen at 11am tomorrow. I asked what was the point of seeing her instead of going straight for the ultrasound she said that they had to see me before being sent for an ultrasound (I know this is not true) but I will go along with the flow and make them give me an ultrasound. She said that the fact that the first one did not grow more since the 5th May is good.. but I really don't think that the appearance of the second one is good..she said it is still very likely to be an infection. yes I still have my tonsils. Don't think it is mono because except for the worry which is bringing me down and sucking up my energy, I am not feeling very tired. But my neck is quite sore on the right side particularly which is why I have managed to wait for 3 weeks so far since it actually appeared. But the more I read about it the more I think it is ridiculous to make me wait. __________________ 35 y/o June 06: BC stage I Grade 3; ER/PR neg Her-2+++; lumpectomies Aug 06: Stage IV liver mets: 6 tumours July 06 to Jan 07: 2FEC+6Taxotere; 3TACE; LITT March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle). Herceptin since 2006 NED til Oct 09 Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised.. Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo.. superior vena cava blocked: stent but face remains puffy April 2012: Teresa Trial, randomised to TDM1 Nov 2012 progressing on TDM1 Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes. Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor. 'Under no circumstances should you lose hope..' Dalai Lama Last edited by fullofbeans; 05-18-2010 at 05:30 AM..*