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Old 05-13-2010, 08:52 AM   #24
Sheila
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Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Re: Hoarssness of voice and right supraclavicular node enlarged: help!!

FullofBeans
The first time I noticed the lump, it was tender, about the size of a small grape. 3 nodes were removed, all the breast cancer (mets). I was then able to receive herceptin, as i had mets (I was originally Stage 1, clean nodes). This occured 1 1/2 yrs after original diagnosis. Herceptin kept things in check for a year or more, then they started growing again....that was when chemos were added...they would disappear, then come back, chemo change, they would go away...etc. The hoarseness came after a bout of pneumonia, lots of coughing...but when it didnt go away, a CT of the neck revealed enlarged metastatic nodes pressing on the Left vocal cord. This has caused vocal cord paralysis on the left side, so i sound like I have a Minnie Mouse voice....
anyway, I never had a sore throat through any of this...if you have more than one node swollen, or on both sides, even more than 1 on one side, it can be from a sore throat, infection etc. Try not to worry, even IF it was something, treatment will keep it in check.....I have been fighting nodes for 7 years!!!
Thinking of you, I know how hard this is, believe me!
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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