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Old 05-13-2010, 08:40 AM   #23
fullofbeans
Senior Member
 
Join Date: Jan 2007
Location: UK
Posts: 617
Re: Hoarssness of voice and right supraclavicular node enlarged: help!!

thanks again, I know I am not being cool at all. but it is in my nature never been a calm and collected person, alas.

michka, no it is not a stupid question and yes hard to get a pet scan here, unfortunately. And they are not so reliable I suppose in anycase (from what I see from this site but i may be wrong). but as suggested by StephN I should see if they can organise an ultrasound.

Sheila: first thanks for you experience it sounds stupid but i actually had not considered that it could be mets to the supraclavicular nodes only. I only thought that it could be a sign of malignancy for other places such as the lung... but yes these are on the same side as the cancer.. how does that work do you just have the mets in nodes? how come it cannot be removed by cutting off the nodes..(I am sure it is terribly very stupid question but know nothing about it and seem little easy accessible info..)

when you noticed the node(s) how big were they and how quickly did they grow? Also did you have a sore throat (feel like my neck nodes are tender aswell) so i guess that is why I never considered just supraclavicular node only but as I do not know the symptoms: do you simply have enlarged nodes (and hoarseness)? would the node not need to be big to affect voice box?
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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