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Clinical Trial for Lymphedema - Flexitouch
Sharing this information I picked up at the hospital on a clinical trial for the Flexitouch system. I am not eligible--you need to be 6 months out of treatment. My surgeon is going to try and get this for me anyway. Below is a link to their site and a YouTube video I found about the woman who designed the system.
If anyone has used this please let me know.
http://www.tactilesystems.com/flexit...FUxc2god1z6u0g
http://www.youtube.com/watch?v=eXvhzpSjOUk
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Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
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