HER2 Support Group Forums - View Single Post - Judge invalidates Myriad's BRCA1/2 gene patent

Becky · 03-30-2010, 02:55 PM

I do know of a woman in my local support group that was contacted due to an oddity that was discovered many years ago. She ended up being BRCA 1 (a new variant) positive. Fortunately, 20+ yrs ago she had both breasts removed and her ovaries. Unfortunately, all three of her daughters tested positive and a sister (her mother passed from bc many years ago).

So, yes, they do contact you again and you give blood again but I don't know if you pay again.

03-30-2010, 02:55 PM	#5
Becky Senior Member Join Date: Sep 2005 Location: Stockton, NJ Posts: 4,179	Re: Judge invalidates Myriad's BRCA1/2 gene patent I do know of a woman in my local support group that was contacted due to an oddity that was discovered many years ago. She ended up being BRCA 1 (a new variant) positive. Fortunately, 20+ yrs ago she had both breasts removed and her ovaries. Unfortunately, all three of her daughters tested positive and a sister (her mother passed from bc many years ago). So, yes, they do contact you again and you give blood again but I don't know if you pay again. __________________ Kind regards Becky Found lump via BSE Diagnosed 8/04 at age 45 1.9cm tumor, ER+PR-, Her2 3+(rt side) 2 micromets to sentinel node Stage 2A left 3mm DCIS - low grade ER+PR+Her2 neg lumpectomies 9/7/04 4DD AC followed by 4 DD taxol Used Leukine instead of Neulasta 35 rads on right side only 4/05 started Tamoxifen Started Herceptin 4 months after last Taxol due to trial results and 2005 ASCO meeting & recommendations Oophorectomy 8/05 Started Arimidex 9/05 Finished Herceptin (16 months) 9/06 Arimidex Only Prolia every 6 months for osteopenia NED 18 years! Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"