Thread: Chelee????
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Old 03-28-2010, 11:22 PM   #40
Lien
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Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
Re: Chelee????

Hi Chelee,

It's wonderful to hear from you , and even more wonderful to hear the good news. Lungs better, pain in hip much less, scans clean... Those are major things and I am doing my Happy Dutch Clog Dance for you.

I understand why you would be worried about the pain in your leg increasing and about the cause of your symptoms. That's only natural when your body has recently "betrayed" you and you don't really trust your onc. You will have to adjust to that and that takes time. However, it seems that you have a good medical team now (with the second opinions and all of us to chime in) and that you are doing better, feeling better. So you seem to be on the right track. My best friend is a dermatologist, and she once told me that quite often they don't know what works best and why for whom. So they practice trial an error, because it's all they've got.

The pain in your leg could be caused by the rads. Initially rads cause inflammation, so that could be the culprit. Ask your rads onc. or nurse.

Now about the duration of chemo: I think it would be wise to continue a bit longer. You seem to tolerate the lower dose well. But I"m no doctor, so perhaps you could ask the doc the reason why she wants you to stop, and the pro's and cons for both decisions?

Hugs

Jacqueline
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Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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