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Old 03-21-2010, 03:06 AM   #4
Pam P
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Join Date: Sep 2005
Location: MN
Posts: 731
Re: Lymphedema & Summertime

I wear a sleeve daily and a glove as needed. I've been doing it so long it's just part of my 'uniform'. Yes, it seem hot in the summer at first, but now I don't really notice it so much. If I don't wear the sleeve for active time during the day my arm starts to swell and get hardened pretty quickly so I think it best not to go without it. Last summer I did take if off for brief times when sitting in the sun to try to get some tan on it. But it got red and splotchy rash on forearm which I think could have gotten infected. I even used sun screen too. I don't like the idea of one arm not being tanned either, but since I wear the sleeve everyday no one sees it's lighter anyway.

Yes, I used to hate wearing the sleeve in the summer with short sleeves it sure isn't a stylish fashion statement. But it's just what I've got to do to take care of it so I do it. I see other women doing the same. It's just getting used to it. It doesn't stop me from wearing sleeveless tops.

I have a reid sleeve but found it very unconfortable. I now have an arm assist to wear at night it is still thick but softer and a lot more comfortable to sleep in.
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Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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