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Old 03-11-2010, 12:43 AM   #14
Catherine
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Join Date: Dec 2006
Location: Oregon
Posts: 715
Re: Compression Sleeve/Lymphedema/Radiation

Hi Vicky,

My radiation was 4 years ago. I did not have a choice since I had some lymph involment. I think I had 33 or 36 rounds. They did burn my skin more than I expected. They did not use a jell and they did not warn me how "burned" my skin would be. I was exhausted by the time all the rads were over. Good news though, my skin did recover, it is fine now. I worked with a lymphadema specialist for about 8 or 10 visits. On my own, I worked with my massage therapist after that. My effected arm is fine, but even 4 years later, I can get some heaviness and a little swelling. I try to take very good care of my skin on my chest. And I try to stretch my arm and massage it. The lymph spec taught me how to help the lymph drain by massaging in the right direction. It will get better. In the meantime continue to gain all the information you can.

All the best, Catherine
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Catherine


Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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