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Old 03-10-2010, 10:06 PM   #13
vlcarr
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Join Date: Jun 2009
Posts: 343
Re: Compression Sleeve/Lymphedema/Radiation

Thanks WCG and Sandra,

I'm a realist so I appreciate the honesty of your posts. I keep trying to remember to count how many marks are on me but I keep forgetting--doing that a lot lately--lol.

Let's just say I don't think there is much they are not radiating. They first come from the left, then the machine goes to the right side and finally over the scar area. Tomorrow I'm going to count how many times they actually hit me.

I'm fair as well so expecting the burn although it has not happened yet--this is my 2nd week.

I remember when I went for a mammo while I was on the clinical trial and there was a lady in the waiting room with me. She had one breast removed about 3 years ago and I had not had my mastectomy at the time. She told me she was not prepared for her chest being caved in as much as it was and she was not prepared for how much burn she got during radiation. I now truly understand what she meant.

I'm going to see the lymp therapist tomorrow so she can look at the sleeve so I can feel better that it's the right fit. She's really nice, I sent her an e-mail about the imprints and she said she would be there tomorrow doing paperwork and told me to stop by between 2:00 and 3:30. She replied to my message within 24 hours.

I have my herceptin infusion first then radiation.

I keep a notebook handy and write down questions as I think of them. All of my doctors have commented on what a good idea it is. I've even gone back and reviewed it when I forget information. It comes in handy.

You are both such inspirations! Thank you for sharing your experiences. I will post back about the sleeve in case others may have questions about it.
__________________
Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
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