Thread: not good scans
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Old 02-22-2010, 06:48 PM   #2
Jackie07
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Re: not good scans

Dawn,

Skip had started a thread just this month asking for 'liver' stories:

http://her2support.org/vbulletin/sho...ght=liver+mets

If you look up the 'long-time survivor' thread, you'll find many members who have either gotten rid of their liver mets or have them under control.

Here are three of our sisters who have successfully treated their liver mets, brain mets... etc.

Kim in CA

*Diagnosed Feb. 1997 4.5cm IDC <10%ER+, PR-. 5/36 nodes positive. Mastectomy followed by 3 rounds AC, then High Dose Chemo with Stem cell rescue, then 6 weeks rads.

*Sept. 2001 widespread mets to liver. 8 months Taxotere and Herceptin brought me almost to NED. Stopped Taxotere and added Femara .

*November 2002 liver resection to remove suspicious spot that turned out to be necrosis. Officially NED!

Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission

StephN
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads
3 mos after rads liver full of tumors, Stage IV Jan 2002
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
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NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
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Last edited by Jackie07; 02-22-2010 at 07:30 PM..
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