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Re: Anniversary of NED...when does the count begin?
Funny, I've always wondered this, too, but never thought to ask a doctor about it. I went back & forth on whether I wanted my cancerversary to be my diagnosis date or when I found the lump. I've decided to consider the date I found my lump to be my cancerversary - and I just passed my 5 year mark (2/10/05)! As I see it, the cancer was there for who knows how long before I found it, before it was formally diagnosed, before I had surgery, before I had treatment, so I'm a survivor the WHOLE damn time. If I wanted to commemmorate surviving chemo, then maybe I would start the countdown after that. Choose the date that means the most to you!
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Liz
3/05 Initial dx invasive dc 2 cm lump, age 39
lumpectomy & 3 of 5 nodes +, ER+/PR+, Her2+++
alternative chemo 5/05-7/05, rad 8/05-10/05
7/06 dx mets to vertebrae, pelvis & chest lymph nodes
8/06 - 10/06 tamoxifen, herceptin, oophorectomy & zometa
11/06 PET/CT showed continued bone mets, new spot on liver
12/06 began taxotere/herceptin 1x/3 weeks,
2/07 - 2-08 NED!
3/08 progression, start taxol/herceptin weekly, monthly zometa
8/08 start ai & herceptin
12/08 - progression, start weekly navelbine/herceptin thru 6/09 & monthly zometa
7/09 - PET/CT showed improvement in spine, but 2-3 lymph nodes in chest became active
9/09 - 11/09 - weekly abraxane/herceptin
12/09 - PET/CT - chest lymph nodes resolved, progression in spine & pelvis
2/10 - 6/10 - start tykerb/xeloda, progession in spine & pelvis
7/10 - start taxotere/carboplatin/herceptin
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