HER2 Support Group Forums - View Single Post

Chelee · 02-18-2010, 04:18 PM

Pam, Wish I had more time but right now...but I have to run...MIL is very ill.

But I wanted to share with you that when I went out to see Dr. Slamon as you know he wanted me on TDM1. But with my HMO it was impossible. His 2nd choice was Tykerb/Herceptin. He explained how it worked, and told me about the great results they have gotten from it. I was told for me personally...since I was "so Her2" pos...he knew for sure it would work for me.

After seeing Dr. Slamon I had two other 2nd opinions. As you know I was told by the other two onc's that that combo would not work because it didn't have a chemo added. That concerned me so I called Dr. Slamon's office and talked to his NP that works with him. She told me (again) quite matter of FACT that Tykerb/Herceptin DOES work--and works well. So after hearing that I started doing major searches about Tykerb/Herceptin. It took a while but there are LOTS of woman that had great results with this combo.

In fact Vcarr on this board was in a trial before her surgery--this combo made her tumor completely disappear. As we know we are all different...so what works for one might not for another...but I just wanted to tell you what I heard straight from Dr. Slamon's office...let alone all the woman I found that this combo worked great on. I will have to search my folders...I seriously found lots of woman that did great on this. If this does work long enough for you then TDM1 might finally be available for you.

Chelee

02-18-2010, 04:18 PM	#7
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Re: scan results & new treatment update Pam, Wish I had more time but right now...but I have to run...MIL is very ill. But I wanted to share with you that when I went out to see Dr. Slamon as you know he wanted me on TDM1. But with my HMO it was impossible. His 2nd choice was Tykerb/Herceptin. He explained how it worked, and told me about the great results they have gotten from it. I was told for me personally...since I was "so Her2" pos...he knew for sure it would work for me. After seeing Dr. Slamon I had two other 2nd opinions. As you know I was told by the other two onc's that that combo would not work because it didn't have a chemo added. That concerned me so I called Dr. Slamon's office and talked to his NP that works with him. She told me (again) quite matter of FACT that Tykerb/Herceptin DOES work--and works well. So after hearing that I started doing major searches about Tykerb/Herceptin. It took a while but there are LOTS of woman that had great results with this combo. In fact Vcarr on this board was in a trial before her surgery--this combo made her tumor completely disappear. As we know we are all different...so what works for one might not for another...but I just wanted to tell you what I heard straight from Dr. Slamon's office...let alone all the woman I found that this combo worked great on. I will have to search my folders...I seriously found lots of woman that did great on this. If this does work long enough for you then TDM1 might finally be available for you. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.